Agenda

Check-In & Welcome Coffee

Keynote: Healthy Data Protection
This introduction set the tone: a fast tour of 2025’s biggest developments in data privacy and what they mean in practice. We took stock of security, accountability, and cross-border compliance, clarified current regulatory expectations, and mapped the essential steps to build robust, trustworthy programs.
Elisabeth Dehareng

Re-identification Risks and the Mosaic Effect: Are Health Data Ever Truly Anonymous?
This session moved beyond theory and walked participants through the practical steps of assessing re-identification risk using EU legal criteria. While anonymisation is often invoked as a binary (“anonymous vs. personal data”), both CJEU case law and WP29 guidance require a contextual, evidence-based evaluation. This session aimed to make participants  capable of understanding and implementing such  evaluation.
Winnie Dongbou, Pierre-Antoine Gourraud, Donovan Sheppard, Timmothy Dangeon

Coffee Break

AI × Health Data: Navigating Privacy in the Age of Generative Models
The panel looked at how AI is reshaping the use of health data and the privacy challenges that come with it. Speakers discussed risks such as model leakage and data governance gaps, while outlining practical safeguards and compliance strategies. Participants gained a clear understanding of how to responsibly develop and deploy AI systems in a highly regulated health-data environment. Astou Ndiaye, Elisabeth Dehareng, Scott Russell, Michael Brown

European Health Data Space in Action: From Regulation to Real-World Implementation
This session explored how the EHDS is transitioning from regulation to real-world practice. A diverse panel of representatives from key stakeholder groups discussed the main implementation challenges from their respective perspectives and offered concrete proposals to bridge the gap between regulatory design and successful, on-the-ground application.
Anouk Berger, Claire François, Mikel Recuero, Wannes Van Hoof

Lunch & Networking

Privacy-Enhancing Technologies: Enabling Data Innovation Without Compromise
This session explored how PETs enable valuable data use, AI development and collaboration while protecting privacy. Experts highlighted key healthcare use cases, benefits and limitations, and what organisations should consider when adopting PETs.
Gregory Collet, Sophie Stalla, Aymeric Pontvianne, Rafa Gálvez Vizcaín, Maarten Everts, Emmanuel Pham

Global Digital Health Identity and Data Ownership: The Rise of the Patient Wallet
This session looked at the emerging concept of digital health identity and the growing role of the patient wallet. The panel discussed how shifting models of data ownership, access and control are reshaping global health ecosystems and what this means for patients, providers and regulators.
Nathan Lea, Elena Gil, Vincent Keunen, Isabelle de Zegher

Closing Remarks & Networking Event
The day wrapped up with brief thank-yous and key takeaways, followed by another 1-2 hours of relaxed networking. Attendees stayed for a drink and light bites, kept the conversations going, and connected with peers they hadn’t met during the day.